BrumYODO: Birmingham Dying Well Collaborative

Terms of Reference April 2016

Purpose

BrumYODO*- The Birmingham Dying Well Collaborative is a not for profit, voluntary group which exists to develop and promote fresh and innovative approaches around palliative and end of life care, death and dying. *YODO You Only Die Once

“Public health approaches” for palliative care are advocated to engage communities and empower people to talk more openly about these choices (1, 2).

Objectives

The objectives of the Collaborative are:
  • To provide an all-inclusive and supportive network of motivated individuals from a wide range of backgrounds.
  • To advocate for high quality palliative and end of life care, and care around the time of death, for the benefit of people living with life-limiting and life-threatening conditions and their families.
  • To promote the principles of the Dying Well Community Charter (3), and the Ambitions for Palliative and End of Life Care (4).
  • To organise innovative community events including during annual Dying Matters Awareness Week.
  • To develop educational resources and plan future research and evaluative projects.
  • To encourage and support innovation and collaboration amongst individuals and organisations.
  • To champion the Birmingham Dying Well Community Charter Pathfinder project with the National Council for Palliative Care and in close partnership with all stakeholders.
  • To raise money to support the delivery of these objectives.
  • To provide accountability for any monies raised in pursuance of these objectives.

Membership

  • The Collaborative is all-inclusive.
  • Membership is open to anybody (individuals and organisations) as long as they can demonstrate a commitment to the objectives.
  • Members will be asked to demonstrate their support of these objectives by signing up to the objectives.
  • A list of members will be held by the secretary.
  • Members are asked to declare any potential conflicts of interest.
  • Members are free to withdraw from the Collaborative at any time.
  • The management committee will have the authority to terminate membership at any time.
  • Any offensive behaviour, including racist, sexist or inflammatory remarks, will not be permitted. Anyone behaving in an offensive way or breaking the equal opportunities policy may be asked not to attend further meetings or to resign from the group if an apology is not given or the behaviour is repeated. The individual concerned shall have the right to be heard by the management committee, accompanied by a friend, before a final decision is made.
 
  1. Kellehear A. The Compassionate City Charter. . In: Klaus Wegleitner KH, Heimerl K, Kellehear A, editors. Compassionate Communities: Case Studies from Britain and Europe Abingdon Routledge; 2015.
  2. Dying Matters. http://www.dyingmatters.org/page/frequently-asked-questions.
  3. National Council for Palliative Care. The Dying Well Community Charter: Principles of care and support. http://www.ncpc.org.uk/sites/default/files/Dying_Well_Community_Charter.pdf: 2015.
  4. National Palliative and End of Life Care Partnership. Ambitions for Palliative and End of Life Care: A national framework for local action. . http://endoflifecareambitions.org.uk/wp-content/uploads/2015/09/Ambitions-for-Palliative-and-End-of-Life-Care.pdf: 2015.
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